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Partners Home Care Maternal Child Health Resource DirectoryA listing of community resources compiled by: The Directory is also available as a printable PDF: Maternal Child Health Resource Directory (PDF). Use the links below to view the resources in
each category: Adolescent ProgramsMASSACHUSETTS ALLIANCE ON TEEN PREGNANCY (617-482-9122): Dedicated to ensuring that state policies and programs effectively address the complex issues associated with teen pregnancy. Publish "Teen Parent Guide to Massachusetts Public Benefits and Services. http://www.massteenpregnancy.org/about/index.html PFLAG (Parents, Families and Friends of Lesbians and Gays)(202-467-8180): PFLAG promotes the health and well-being of gay, lesbian, bisexual and transgendered persons, their families and friends through: support, to cope with an adverse society; education, to enlighten an ill-informed public; and advocacy, to end discrimination and to secure equal civil rights. Web site contains publications and resources for adolescent issues. http://www.pflag.org/ ROCA (617-889-5210): Roca is a grassroots, multicultural human development and community building organization based in Chelsea and serving the communities of Chelsea, Revere, East Boston and Lynn, Massachusetts. In partnership with Massachusetts General Hospital, Roca hosts an evening health clinic for young people. http://www.rocainc.org/ TOUGH LOVE INTERNATIONAL (1-800-333-1069): A self-help program for parents, teenagers and communities dealing with "out of control" behavior. http://www.toughlove.org/ TRANSITION PLANNING FOR ADOLESCENTS WITH SPECIAL HEALTH CARE NEEDS AND DISABILITIES: INFORMATION FOR FAMILIES AND TEENS (2000) (617-355-4664): A wonderful guide for transitioning teens with special needs into adulthood. Available through the Institute for Community Inclusion. http://www.communityinclusion.org/transition/familyguide.html TURNING 22: MASSACHUSETTS TRANSITIONAL PLANNING PROGRAM (617-727-7600): For young persons with severe disabilities still in need of services, Chapter 688 serves as a bridge from educational services into the adult human services program. The law provides for a two year transitional process for those young adults who will lose their entitlement to special education upon graduation or reaching the age of 22 and will be unable to work 20 hours per week in competitive employment. http://www.communityinclusion.org/publications/indexb.html AllergiesFOOD ALLERGY AND ANAPHYLAXIS NETWORK (FAAN): (1-800-929-4040) Members include families, dietitians, nurses, physicians, school staff, representatives from government agencies, and the food and pharmaceutical industries. FAAN serves as the communication link between the patient and others. Its vision is to be a world leader in food allergy and anaphylaxis awareness and the issues surrounding this disease. http://www.foodallergy.org/about.html Asthma ManagementASTHMA AND ALLERGY FOUNDATON OF AMERICA (1-800-7-ASTHMA) or New
England Chapter (1-877-2ASTHMA): Publications: "You Can Control Asthma: A Book for Kids," "You Can Control Asthma: A Book for the Family," (in English and Spanish) available for $5.50 each (discounts for quantity orders); ample selection of asthma education materials for children, families, health professionals and schools. http://www.aafa.org/ HEALTHY HOMES PROJECT (1-800-532-9571): Home visit program funded by the Massachusetts Department of Public Health which provides for home visits which will assist families to help make changes that can reduce the risks of Asthma. MASSACHUSETTS ASTHMA ACTION PLAN (1-800-952-6637) http://www.mhqp.org/mhqp_attachments/asthaActionPlan.pdf NATIONAL ASTHMA EDUCATION AND PREVENTION PROGRAM EXPERT PANEL REPORT 2: GUIDELINES FOR THE DIAGNOSIS AND MANAGEMENT OF ASTHMA (NIH): http://www.nhlbi.nih.gov/guidelines/asthma/asthgdln.htm NATIONAL ASTHMA EDUCATION PROGRAM (NIH), MANAGEMENT OF ASTHMA IN THE SCHOOLS (301-592-8573): Standards for Asthma Management, Asthma Education Materials and "Managing Asthma: A Guide for Schools". http://www.nhlbi.nih.gov/health/public/lung/index.htm NEW ENGLAND ASTHMA REGIONAL COUNCIL (NEW ENGLAD ARC) (617-451-0049 x504): The New England ARC is a coalition of public agencies, private organizations and researchers in New England. ARC's members bring the diverse perspectives and resources of health, housing, education, environment, managed care and advocacy organization together to focus on asthma. Leaders with knowledge, resources and determination have joined forces to swiftly identify and implement solutions to improve the lives of those with asthma. Great resources on web; special section on housing problems. http://www.asthmaregionalcouncil.org/about/aboutarc.html PARTNERS HOME CARE PEDIATRIC ASTHMA HOME CARE PROGRAM: (781-290-4200). Three- visit program includes respiratory assessment, asthma education program, trigger management and outcome report to PCP. Additional visits can be arranged if needed. Partners Home Care serves a geographic area from Newburyport in the North, to Framingham in the West, to Plymouth in the South, with regional branch offices in Beverly, Waltham, Braintree and Plymouth. http://www.partnershomecare.org/mch.htm STARLIGHT STARBRIGHT ASTHMA CD-ROM GAME: QUEST FOR THE CODE weaves education about asthma management into an engaging adventure that will have kids playing for hours. (310-479-1212) In English and Spanish; free to families of children with asthma. http://starlightnewengland.org/ "TEACH YOUR PATIENTS ABOUT ASTHMA": A practical and flexible guide designed to help clinicians teach adults and children with asthma. This guide is based on recommendations of the "Expert Panel Report: Guidelines for the Diagnosis and Management of Asthma" developed by the National Asthma Education Program of the National Heart, Lung, and Blood Institute. It can be found online in full text at: http://www.meddean.luc.edu/lumen/MedEd/medicine/Allergy/Asthma/asthtoc.html BereavementTHE CHILDREN'S ROOM (781-641-4741): Support groups amd resources for children, teenagers and their families who are grieving the death of a loved one. http://www.childrensroom.org MASSACHUSETTS CENTER FOR SUDDEN INFANT DEATH SYNDROME (SIDS) (1-800-641-SIDS): Offers culturally competent bereavement support and educational services to families and caregivers of infants who die of all causes of Sudden Infant Death Syndrome. Support includes: 24-hour telephone crisis intervention and information, home visits by specially trained bereavement counselors, parent support group meetings and peer support contacts. http://www.bmc.org/pediatrics/special/SIDS/ MASSACHUSETTS INFANT AND CHILD DEATH BEREAVEMENT PROGRAM (1-800-641-7437): Offers culturally competent bereavement support and educational services to families and caregivers of infants and young children who die of all causes of death (0-3) throughout Massachusetts. http://www.bmc.org/pediatrics/special/SIDS/ PARENT SUPPORT GROUP: Contact Tami May (617-732-5419). A four-session support group for families who have experienced perinatal loss. Held at Brigham and Women's Hospital, but open to all who have suffered perinatal loss. BreastfeedingBREASTFEEDING.COM: Internet resource for breastfeeding mothers and mothers-to-be featuring information, tips, resources and products. http://www.breastfeeding.com/ BREAST PUMP FOR PURCHASE OR RENT: MEDELA (1-800-435-8316) http://www.medela.com/ HOLLISTER AMEDA (1-877-992-6332) http://www.ameda.com/ LA LECHE LEAGUE (1-800-LA-LECHE): http://www.lalecheleague.org/ MASSACHUSETTS BREASTFEEDING COALITION: The Massachusetts Breastfeeding Coalition (MBC) is an alliance of organizations and individuals involved in maternal/child health whose purpose is to promote, protect and support breastfeeding in the Commonwealth. Provides educational programs and materials. http://www.massbfc.org/ MASSACHUSETTS BREASTFEEDING RESOURCE GUIDE (Call 617-624-6153 for free copy): Comprehensive reference including listing of lactation consultants, programs, policies and references developed by the Massachusetts Breastfeeding Coalition and printed by WIC.http://www.massbfc.org/resources/order.html NURSING MOTHER'S COUNCIL/BACE (BOSTON ASSOCIATION FOR CHILDBIRTH EDUCATION) (617-244-5102): Breastfeeding information, supplies and counselors. OUTPATIENT BREASTFEEDING CONSULTATION: Consult local birthing hospitals. Some hospitals have outpatient breastfeeding consultation for nominal fee. Care CoordinationCOMMUNITY CASE MANAGEMENT (1-800-863-6068): Care coordination for MassHealth members under 22 who require more than 2 hours of consecutive nursing care each day. Services include a comprehensive needs assessment, an in-person home visit, a clinically appropriate service plan, and care collaboration with other providers. http://www.communitygateway.org/faq/ccm.htm MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH, DIVISION FOR SPECIAL HEALTH NEEDS: CARE COORDINATION PROGRAM (617-624-5070): Experienced staff members are located in regional health offices and selected local pediatric practices in each part of the state. Care coordinators provide information and referral to community services; case-specific consultation to parents, educators, and medical and social service providers in home and agency settings; training in public benefits to parents' groups and agency staff. http://www.mass.gov/dph/fch/care/index.htm Child CareDEPARTMENT OF EARLY EDUCATION AND CARE (617-988-6600): Massachusetts agency which is responsible for the licensing of child care providers in the state of Massachusetts. Web site is a fantastic resource to assist families to evaluate their child care options, locate licensed providers and assess income eligibility for voucher programs. http://www.eec.state.ma.us/ MEDICAL DAY CARE PROGRAM (617-254-3800): Medical day care program for children with chronic but stable medical conditions. http://www.fchrc.org/ PARTNERS HOME CARE TLC NURSING PRIVATE DUTY SERVICES (1-800-698-2628): Includes a variety of private pay support services for newborns, children and adults, such as homemaker/companion services, light housekeeping, grocery shopping, meal preparation and escorting to appointments. Home Health Aide/Personal Care Homemaker Services (assistance with activities of daily living), Private Duty Nursing. http://www.partnershomecare.org/privateservices.htm Children with Special Health Care NeedsABLEDATA (1-800-227-0216): A federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. http://www.abledata.com/ ADAPTIVE EQUIPMENT/ORTHOTICS: From braces and adaptive equipment to home modifications. Consult ortho/PT/OT. ATEC: ASSISTIVE TECHNOLOGY CENTER AT SPAULDING REHABILITATION HOSPITAL (617-573-2928): State of the art Assistive Technology Center provides technological solutions to increase the functional abilities of children with disabilities. http://spauldingrehab.org/body.cfm?id=59 ASSISTIVE TECHNOLOGY PROGRAM (1-800-245-6543): Program of the Massachusetts Rehabilitation Commission to enable individuals with severe disabilities the ability to access assistive technology devices and training. http://www.state.ma.us.mrc "DIRECTIONS: RESOURCES FOR YOUR CHILD'S CARE": An organizing notebook and resource for children with special health care needs. http://www.mass.gov/Eeohhs2/docs/dph/populations/special_needs/directions/order_form.doc DISABILITY EXCHANGE.ORG: Web site that serves as a central resource within the Partners community for disability-related information, services and products. Provides links to disability issues covered in the media; information on workshops, lectures and other events; E-commerce function for items such as assistive hardware/software, communication devices, videos and CDs; adaptive software download: Browse Aloud-—a plug-in that enables the computer to read to the user; articles, newsletters and links to additional disability sites. http://www.disabilityexchange.org EQUIPMENT FOR SPECIAL NEEDS CHILDREN: Web site sponsored by "Exceptional Parent" magazine listing links to manufacturers of equipment for children with special needs. http://www.eparent.com/resources/wcdexpo_exhibitor_indexep.htm FEDERATION FOR CHILDREN WITH SPECIAL NEEDS FAMILY RESOURCE DATABASE: The Family Resource Database contains iformation about agencies in Massachusetts and throughout the United States which provide information and/or services to families. The database is divided into many categories as well as cross-referenced by age group and regions in Massachusetts where applicable. http://http://fcsn.org/resources/search.php3 FAMILY TIES RESOURCE DIRECTORY: Comprehensive Resource Directory developed by Family Ties to assist families of children with special needs to locate resources. Directory can be downloaded from internet site. http://www.massfamilyties.org/directory.html HOME MODIFICATIONS FOR INDIVIDUALS WITH DISABILITIES: LOAN PROGRAM (617-204-3636): Provides loans for access modifications to the principal residence of elders, adults with disabilities and families with children with disabilities. Based on income eligibility. http://www.state.ma.us/mrc MASSACHUSETTS CATASTROPHIC ILLNESS IN CHILDREN RELIEF FUND (1-800-882-1435): Intended to provide financial assistance to families with children experiencing a medical condition requiring services that are not otherwise covered by a private insurer, federal or state health care assistance, or other financial resource. In order to be eligible, a family must have expenses related to a child's medical condition that exceed 10% of the family's gross annual income up to $100,000 and 15% of any portion of the annual family income that exceeds $100,000. http://www.mass.gov/cicrf/ MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH, DIVISION FOR SPECIAL HEALTH NEEDS: CARE COORDINATION PROGRAM (617-624-5070): Experienced staff members are located in regional health offices and selected local pediatric practices in each part of the state. Care coordinators provide information and referral to community services; case-specific consultation to parents, educators, and medical and social service providers in home and agency settings; training in public benefits to parents' groups and agency staff. http://www.mass.gov/dph/fch/care/index.htm MASSACHUSETTS DEVELOPMENTAL DISABILITIES COUNCIL Consumer Empowerment Funds: The Massachusetts Developmental Disabilities Council provides funds for individuals who are legal residents of Massachusetts with developmental disabilities and/or a family member or guardian to attend conferences or other events in Massachusetts or another state. http://www.state.ma.us/MDDC/cefp MASSACHUSETTS MEDICAL HOME PROJECT: An initiative of the American Academy of Pediatrics and the Division for Special Health Needs within the Bureau of Family and Community Health in DPH. The goal is to ensure that children with special needs have access to a medical home. Consult web site for project status, resources and training opportunities. http://www.medicalhomeinfo.org/resources/state/massachusetts.html NICHCY: NATIONAL INFORMATION CENTER FOR CHILDREN AND YOUTH WITH DISABILITIES (1-800-695-0285): An information clearinghouse that provides free information on disabilities and disability-related issues such as referrals, education and family issues. Web site also in Spanish. http://www.nichcy.org/ NORTH SHORE CHILDREN'S HOSPITAL PEDIATRIC REHABILITATION SERVICES (978-741-1215): Multidisciplinary developmental and rehabilitation evaluations and services including Audiology, Physical Therapy, Occupational Therapy, Language, Speech and Hearing, Feeding Team, Language Learning Team Evaluations, Florence Robertson Pediatric Rehabilitation Clinic and High Risk Infant Follow Up. http://nsmc.partners.org/web/program/pediatrics PARTNERS HOME CARE PEDIATRIC REHABILITATION PROGRAM (781-2904200): Team members include a Pediatric Physical Therapist, Occupational Therapist, Speech and Language Pathologist. The team conducts developmental and rehabilitation assessments, sets specific rehabilitation goals and treatments and coordinates their efforts with other programs the child may be involved in. Goal is transition to community-based outpatient and school-based services. Partners Home Care serves a geographic area from Newburyport in the North, to Framingham in the West, to Plymouth in the South, with regional branch offices in Beverly, Waltham, Braintree and Plymouth. http://www.partnershomecare.org/mch.htm PASS IT ON, INC. (1-800-267-6768): A non-profit charitable organization staffed by volunteers that recycles "used but usable" medical equipment and provides it to individuals with disabilities and their families. The agency services all of eastern Massachusetts and westerly to the Worcester area. SPAULDING REHABILITATION HOSPITAL (617-573-7000): Multidisciplinary developmental and rehabilitation evaluations and services. Refer to internet for listing of services at each of seven outpatient sites. http://spauldingrehab.org SUMMER CAMP DIRECTORY (1-800-331-0688): Published annually by the Federation for Children with Special Needs, the Summer Camp Directory Booklet provides information on 80 day and residential summer camps, plus a listing of local community resources. It provides guidelines for selecting a camp, and suggestions for including children with disabilities in regular camps. Camp Directory is also online. http://www.fcsn.org/camps/directory.html TRANSITION PLANNING FOR ADOLESCENTS WITH SPECIAL HEALTH CARE NEEDS AND DISABILITIES: INFORMATION FOR FAMILIES AND TEENS (2000) (617-355-4664): A wonderful guide for transitioning teens with special needs into adulthood. Available through the Institute for Community Inclusion. http://www.communityinclusion.org/transition/providerguide.html TURNING 22: MASSACHUSETTS TRANSITIONAL PLANNING PROGRAM (1-800-245-6543): For young persons with severe disabilities still in need of services Chapter 688 serves as a bridge from educational services into the adult human services program. The law provides for a two-year transitional process for those who will lose their entitlement to special education upon graduation or reaching the age of 22 and will be unable to work 20 hours per week in competitive employment. http://www.communityinclusion.org/publications/indexb.html DentistCHILDREN'S MEDICAL SECURITY PLAN DENTAL PROVIDER DIRECTORY: UNICARE (1-800-234-9778) or check online listing. Patients should call Unicare customer service to determine coverage and request precertification if needed. http://www.cmspkids.com MASSACHUSETTS DENTAL SOCIETY (1-800-342- 8747): Referrals to dentists/special needs dentistry. http://www.massdental.org/ DevelopmentEARLY HEAD START (617-573-1600): Comprehensive child development programs serving low income pregnant woman, infants and toddlers. http://www.ehsnrc.org/ProgramLocator/ehssites.cfm EARLY INTERVENTION (1-800-905-8437): Free developmental evaluation and services available to families of children birth to three years of age for whom there are developmental concerns, or whose typical development is at risk due to certain birth or environmental circumstances. http://massfamilyties.org/ei/index.html HEAD START (617-565-1128): Comprehensive child development programs to increase school readiness for low income children age 3-5 and their families. Services involve parents and include education, medical, dental, nutrition and mental health. Services are responsive and appropriate to each child's and family's developmental, ethnic, cultural, and linguistic heritage and experience. Family must have income below the poverty line or be receiving public assistance; i.e. SSI or TANF benefits. DiabetesAMERICAN DIABETES ASSOCIATION (1-800-DIABETES; 1-800-342-2383): Mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. http://diabetes.org CAMPS FOR CHILDREN WITH DIABETES: Listing at http://www.childrenwithdiabetes.com/camps/ CHILDREN'S DIABETES FOUNDATION (303-863-1200) is a non-profit organization dedicated solely to the support of research in childhood diabetes and to provide the best possible clinical and educational programs for children with the disease. http://www.childrensdiabetesfdn.org "HELPING THE STUDENT WITH DIABETES SUCCEED: A GUIDE FOR SCHOOL PERSONNEL" can be downloaded from the internet at http://www.ndep.nih.gov/resources/school.htm JUVENILE DIABETES RESEARCH FUND: Mission is to find a cure for diabetes and its complications through the support of research. Web site offers great books for children with diabetes as well as their siblings, friends and classmates. http://www.jdrf.org/index.cfm Domestic ViolenceDSS CHILD AT RISK HOTLINE (1-800-792-5200): To report child abuse, access follow-up services including crisis intervention and emergency services, counseling, protective child care, parent aid services, substitute care and case management. http://www.jbcc.harvard.edu/programs/hotline.htm EMERGENCY SHELTER: Consult your social service department or contact the Haven program at MGH or the Passageway program at Brigham and Women's Hospital. HAVEN (617-724-0054): An MGH based program for domestic violence. MASSGENERAL HOSPITAL FOR CHILDREN CHILD PROTECTION TEAM (617-724-0285) http://www.massgeneral.org/MGHfc/MGHfc_medspec_childprotectionteam.htm PASSAGEWAY (617-732-8753 OR 1-800-722-5520 x8753): Brigham and Women's domestic violence advocacy, consultation, training, awareness and community linkage program. Emergency Response PlanAMERICAN ACADEMY OF PEDIATRICS EMERGENCY PLAN AND FORM: This program was developed by the AAP to assist families and health care providers in the development of emergency response plans for children with special health care needs. http://www.aap.org/advocacy/emergprep.htm EMERGENCY RESPONSE PLAN: A GUIDE FOR FAMILIES (617-726-3071): Step-by-step guide for families to assist in the development of an emergency response plan for a child living at home who is at risk of an acute medical emergency. PARTNERS HOME CARE LIFELINE PROGRAM (1-800-910-4225): Offers a variety of options for calling a response center or a third party in an emergency. Options include a Personal Help Button (PHB), worn on the wrist or around the neck or a telephone link for people with limited physical abilities, through a selection of electronic switches specially designed for small movements such as a puff, a sip on a tube, a roll of the head, or the blink of an eye. http://www.partnershomecare.org/lifeline.htm Fuel Assistance ProgramFUEL ASSISTANCE PROGRAM (1-800-632-8175): Federally funded Low Income Home Energy Assistance Program (LIHEAP) assists low-income individuals and families with the cost of heating their homes in winter. Hearing DisabilitiesFAMILY SIGN LANGUAGE PROGRAM (781-388-9114): Massachusetts State Association for the Deaf. Provides sign language instruction to hearing parents, extended family, and caregivers of deaf and hard of hearing infants from birth to three years of age. Family classes are taught by Deaf instructors and are free to all participants who meet the eligibility criteria. http://msad.org/ HEARING AID PROGRAM FOR CHILDREN (1-800-882-1435): Provides payment for hearing aids for financially eligible children through the 21st birthday. HEARING EVALUATION PROGRAM FOR INFANTS AND TODDLERS (1-800-882-1435 OR TTY 617-624-5992): Information on where to get hearing tested. Program will pay for testing for children under 3 if testing not covered by insurance. http://www.mass.gov/dph/fch/unhsp/index.htm MASSACHUSETTS COMMISSION FOR THE DEAF AND HARD OF HEARING (617-740-1600 or TTY 617-740-1700; Child specialists 617-695-7500): The Massachusetts Commission for the Deaf and Hard of Hearing is principal agency in the Commonwealth on behalf of people of all ages who are deaf and hard of hearing. Services include case management, interpreter services, technology services including telecommunication and assistive listening devices, independent living services, information services, and such other services as it determines are needed. http://www.mass.gov/mcdhh/ RESOURCE DIRECTORY FROM THE MASSACHUSETTS COMMISSION FOR THE DEAF AND HARD OF HEARING (617-740-1600 or TTY 617-740-1700): Comprehensive directory of resources available in PDF format. http://mass.gov/Eeohhs2/docs/mcdhh/resource_directory.pdf HIVHIV RESOURCE GUIDE 2005 published by the Massachusetts Department of Public Health, HIV/AIDS bureau. Download from: http://www.mass.gov/dph/aids/resource_guide.pdf MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH HIV/AIDS BUREAU (617-624-5300): The Bureau's mission is to assist in preventing the spread of the HIV epidemic and the development of appropriate, cost-effective health and support services which will maintain patients in the least restrictive setting.http://www.mass.gov/dph/aids/ MASSCARE (MASSACHUSETTS COMMUNITY AIDS RESOURCE ENHANCEMENT) DEPARTMENT OF PUBLIC HEALTH (617-624-5070): The MassCARE Program was designed to ensure access to and enhance statewide capacity to provide coordinated, comprehensive, family-centered, culturally and linguistically competent counseling, testing, and care for individuals living with HIV. http://www.mass.gov/dph/fch/masscare.htm Home CarePARTNERS HOME CARE MATERNAL INFANT AND PEDIATRIC HOME CARE PROGRAM (781-290-4200): Specialized in-home family centered prenatal, post-partum, high-risk infant; general pediatric and adolescent programs for patients with a broad range of medical and social challenges. Staff experienced in complex medical problems and their specialized treatments. Partners Home Care serves a geographic area from Newburyport in the North, to Framingham in the West, to Plymouth in the South, with regional branch offices in Beverly, Waltham, Braintree and Plymouth. http://www.partnershomecare.org/mch.htm PARTNERS HOME CARE TLC NURSING PRIVATE DUTY SERVICES (1-800-698-2628): Includes a variety of private pay support services for newborns, children and adults such as homemaker/companion services, light housekeeping, grocery shopping, meal preparation and escorting to appointments. Home Health Aide/Personal Care Homemaker Services (assistance with activities of daily living), Private Duty Nursing. http://www.partnershomecare.org/privateservices.htm HousingMASS ACCESS (617-742-0820): A registry of accessible housing in Massachusetts for people with disabilities. http://massaccesshousingregistry.org/registry/registrymax.nsf/webpages/home?open SAFE AND SANITARY HOUSING (1-800-392-6090): Under the jurisdiction of the local Board of Health. The regulations protecting the health, safety and well being of Massachusetts citizens are found in Chapter II of the State Sanitary Code entitled "Minimum Standards of Fitness for Human Habitation". For additional information contact local board of health. http://www.state.ma.us/sec/cis/cissfsn/sfsnidx.htm Lead PoisoningCHILDHOOD LEAD POISONING PREVENTION PROGRAM (CLPPP) (1-800-532-9571): Established for the prevention, screening, diagnosis, and treatment of lead poisoning, including the elimination of sources of poisoning through research and educational, epidemiological, and clinical activities. CLPPP provides a range of both primary and secondary prevention services to the children of Massachusetts, their families and others with an interest in the prevention of lead poisoning. CLPPP also provides coordinated and comprehensive nursing case management. http://www.state.ma.us/dph/clppp/clppp.htm MedicationsINDIGENT PRESCRIPTION PROGRAMS: Programs administered through drug companies which provide samples to patients who are unable to pay for their prescription medications. Applications can be obtained from the drug company and/or physician. Applications usually need to be submitted by the physician to the drug company, samples are delivered to the physician's office and the patient picks them up at the office. For a copy of the "Directory of Pharmaceutical Indigent Assistance," which lists all pharmaceutical companies and products available, contact: http://www.cancersupportivecare.com/drug_assistance.html INTERNATIONAL ACADEMY OF COMPOUNDING PHARMACISTS (IACP) (1-800-927-4227): Organization for compounding pharmacist, a pharmacist that prepares customized prescription medication to meet individual patient needs. Internet site has a locater for pharmacists. http://www.iacprx.org/referral_service/index.html MASSACHUSETTS GENERAL HOSPITAL PHARMACY: Provides eligible patients medications from a formulary at no cost to the patients. Available at MGH pharmacy at main campus or Revere. MEDICAL ASSISTANCE PROGRAM (1-800-462-1120): Children receiving MassHealth may be eligible for coverage for certain OTC (over-the counter) medication. Prescription required. Mental HealthMASSACHUSETTS GENERAL HOSPITAL SCHOOL PSYCHIATRY.ORG: This web site was created for clinicians, clinicians-in-training, educators, and parents to help identify and support the needs of children and adolescents with psychiatric conditions, particularly in the school setting. The material in this web site is appropriate for clinicians who work in schools (e.g., school psychologists, guidance counselors) and those who work in mental health settings (e.g., psychiatrists, psychologists, social workers). Clinicians will find a broad range of material here, from diagnostic screening tools to practical strategies that can be recommended to families to ease a young person'e stresses at home and at school. http://www.massgeneral.org/madiresourcecenter/schoolpsychiatry PAL: PARENT/PROFESSIONAL ADVOCACY LEAGUE is the statewide organization of the Federation of Families for Children's Mental Health. PAL provides support, education, and advocacy around issues related to children's mental health. PRN (Parent Resource Network) Line: 1-866-815-8122; parents/family members and adolescents can obtain support and get information on mental health services. http://www.ppal.net/index.html MultiplesMASSACHUSETTS MOTHERS OF TWINS ASSOCIATION (781-646-TWIN): Referrals to support groups and programs for parents with multiple births. http://www.mmota.org/ MOST (MOTHERS OF SUPERTWINS) (631-859-1110): A national multiples support group. http://www.mostonline.org/ TRIPLET CONNECTION (209-474-0885): A national triplet support group. http://www.tripletconnection.org/ TRIPLETS, MOMS AND MORE (339-927-2365): A support network for parents and parents-to-be of triplets and more. http://www.tripletsmomsandmore.org NewbornsCAR SEATS (1-800-CAR-SAFE): Listing of local car seat loan programs and car seat safety information. Sponsored by DPH. FIRST LINK (1-800-311-2229): System which provides universal screening of all newborns via birth certificate for conditions which may place them at risk for adverse health or developmental outcomes, and which employs home visiting to link identified families with needed services and support through referral to programs and services. Participation is voluntary. http://www.mass.gov/dph/fch/firstlink/index.htm PARTNERS HOME CARE MATERNAL INFANT PROGRAM (Referrals 781-290-4200): Specialized home care programs for maternal/newborn; high-risk newborn; near term and premature infant and hyperbilirubinemia. Partners Home Care serves a geographic area from Newburyport in the North, to Framingham in the West, to Plymouth in the South, with regional branch offices in Beverly, Waltham, Braintree and Plymouth. http://www.partnershomecare.org/mch.htm PARTNERS HOME CARE TLC NURSING PRIVATE DUTY SERVICES (1-800-698-2628): Includes a variety of private pay support services for newborns, children and adults such as homemaker/companion services, light housekeeping, grocery shopping, meal preparation and escorting to appointments. Home Health Aide/Personal Care Homemaker Services (assistance with activities of daily living), Private Duty Nursing. http://www.partnershomecare.org/privateservices.htm NutritionFOOD STAMPS (1-800-249-2007): Free coupons to buy groceries. Eligibility: There are certain income, savings and property qualifications but may qualify even if own a home, receive unemployment insurance, working, have a car, have no children. http://www.gettingfoodstamps.org/ FOOD PANTRIES: Community based programs which provide food for needy families. Contact Town Clerks, local churches. FOOD SOURCE HOTLINE (1-800-645-8333): Provides information on emergency meals in the Boston area. PKU SPECIAL DIETARY FOOD AND FORMULA PROGRAM (1-800-882-1435): Pays for special food and formula for uninsured children with PKU and other related metabolic conditions. SHARE (617-828-5151): Participants volunteer for community service in exchange for discounted food packages. WIC (1-800-WIC-1007): Provides free food and nutritional information to help keep pregnant women, infants and children under five healthy and strong. Generally strong breastfeeding support. Eligibility: Pregnant, postpartum or breastfeeding woman, infant or child under 5 years of age, a nutritional need and meets income guidelines. http://www.fns.usda.gov/wic/ OncologyAMERICAN CANCER SOCIETY: Information for Professionals and Patients re: cancer, treatment, alternative and complementary therapies and bookstore. http://www.cancer.org/docroot/home/index.asp ASSOCIATION OF CANCER ONLINE RESOURCES: Pediatric Oncology Resource Center. This site was created by and for people who know young people who are recovering from cancer. There are resources, web links and references. http://www.acor.org/ped-onc ASSOCIATION OF PEDIATRIC ONCOLOGY NURSES sponsored web site for children with cancer. Site with information for children, adolescents and parents; fun and games as well as links to camps and wish programs. http://www.cancersourcekids.com "BACK TO SCHOOL: TEENS PREPARE FOR SCHOOL RE-ENTRY: Starlight Starbright Children's Foundation: This free video program is for teens with serious illness. Teens who have dealt with going back to school after an extended absence due to an illness share their stories and advice for first days back—how to survive and thrive http://www.starlight.org CHILDREN'S CANCER WEB: A Guide to Internet Resources for Childhood Cancer: An independent non-profit site, providing a directory of childhood cancer resources. http://www.cancerindex.org/ccw "PAIN MANAGEMENT IN CHILDREN WITH CANCER" published by the Texas Children's Cancer Council. http://www.childcancerpain.org Palliative Care"END OF LIFE CARE FOR CHILDEN", published by Texas Children's Cancer Council. http://www.childendoflifecare.org EPERC: End of Life/Palliative Resource Center. Assists those involved in all aspects of end of life (EOL) education including a list of core resources for EOL educators and opportunities for training, extramural funding, and pending conferences. Seeks to create a community of online educational scholars who will enable us to advance the field of EOL education, and, ultimately, the care of patients. http://www.eperc.mcw.edu/ HEALTH CARE DIMENSIONS PEDIATRIC PROGRAM: HOSPICE FOR KIDS (1-800-696-6424): A unique program designed to meet the medical and psychosocial needs of terminally ill children and adolescents. Medical services are coordinated with the attending physician. The focus is on the family as the unit of care including siblings and other extended family. http://www.hcdhospice.org/program.htm MASSACHUSETTS COMMISSION ON END OF LIFE CARE: END OF LIFE RESOURCE GUIDE (617-624-5424): This guide has been developed to make it easier for the public to find out about end of life care resources and services that are available within the Commonwealth. http://www.endoflifecommission.org/end_pages/guide.htm PARTNERS HOME CARE PEDIATRIC PALLIATIVE CARE PROGRAM (781-290-4200): The Partners Home Care Pediatric Palliative Care Program provides family centered care for children with life threatening illnesses. The focus of the program is on comprehensive support to children and their families including assessment of the child for progression of the disease and complications of its management; collaboration with the family and medical team in the management of symptoms; the development of a pain management plan; helping the family access public benefit programs and community resources; and assisting the family to find resources to assist them with suffering, grief and bereavement. Partners Home Care works collaboratively with Hospice Programs in assisting families with transition to Hospice. Partners Home Care serves a geographic area from Newburyport in the North, to Framingham in the West, to Plymouth in the South, with regional branch offices in Beverly, Waltham, Braintree and Plymouth. http://www.partnershomecare.org/ Parent SupportEXCEPTIONAL PARENT (1-877-372-7368): Magazine about children and young adults with special health care needs. http://www.eparent.com FAMILY TIES OF MASSACHUSETTS (1-800-905-TIES): Family TIES is a statewide information and support network provided by and for families of children with special needs. Publish a directory of resources for families "Resources for Families of Children with Special Needs", available for download from web site: http://www.massfamilyties.org/ FEDERATION FOR CHILDREN WITH SPECIAL NEEDS (1-800-331-0688): Parent run organization which helps parents and children obtain the educational, therapeutic and advocacy resources they need to live with disabilities. Provides education and training for parents and professionals. Especially helpful with questions parents have about special education. The staff members are parents of children with special needs. Publish a newsletter, program directories and sponsor a resource library and speaker's bureau. http://www.fcsn.org/ KESSLER HEALTH EDUCATION LIBRARY AT BRIGHAM AND WOMEN'S HOSPITAL (617-732-8103): Books, journals, videos and internet resources on a broad range of topics related to pregnancy, childbirth, breastfeeding and parenting. Professional librarians and trained staff to assist you with access to our print, audiovisual and internet resources. http://www.brighamandwomens.org/healtheducation/ MAXWELL AND ELEANOR BLUM PATIENT FAMILY LEARNING CENTER AT MASSACHUSETTS GENERAL (617-724-7352): Resource center with professional staff, volunteers, books, periodicals, pamphlets, computer access to web site to helps locate information concerning children's medical conditions/medical needs. http://www.massgeneral.org/pflc/index.asp NICHCY: NATIONAL INFORMATION CENTER FOR CHILDREN AND YOUTH WITH DISABILITIES (1-800-695-0285) is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. http://nichcy.org/index.html#about NORD (NATIONAL ORGANIZATION FOR RARE DISORDERS) (1-800-999-6673): Information for children/families on rare pediatric problems. http://www.rarediseases.org/ PARENT STRESS HOTLINE (1-800-632-8188): A 24-hour hotline, the Parental Stress Line is staffed by trained volunteer telephone counselors who care and are concerned about the preservation of families. PDD/AutismAUTISM SOCIETY OF AMERICA: (1-800-588-9239). http://www.saras-autism-diet.freeservers.com BUILDING BLOCKS PROGRAM (978-762-8352): Developmental Program through Early Intervention for children with Pervasive Developmental Delay or Autism. Children are referred through their local EI Programs.http://www.nsarc.org/frame/family/buildingblocks/ COMMUNITY AUTISM RESOURCES (1-800-588-9239): Services and resources are provided at no cost to: parents, family members, professionals, and interested community memebers who live within service region.http://www.community-autism-resources.org LADDERS PROGRAM (781-449-6074): LADDERS is a highly-focused multidisciplinary program designed to diagnose and assist families to deal with the full range of neurological developmental disorders. Medical and multidisciplinary staff are specialized in the diagnosis and treatment of Pervasive Developmental Delay and Autism. A major strength of the program is the development of comprehensive and effective rehabilitation plans for each patient that are communicated to the family and the referring physician. Care is taken to help the family locate appropriate resources. Long term follow-up care is provided via periodic consultations, if desired by the referring physician. http://www.massgeneral.org/mghfc/MGHfC_medspec_ladders.htm Postpartum DepressionDEPRESSION AFTER DELIVERY (1-800-944-4PPD): Information for new parents and referrals to local providers and support groups. http://www.depressionafterdelivery.com/ JEWISH FAMILY & CHILDREN'S SERVICES: CENTER FOR EARLY RELATIONSHIP SUPPORT (617-558-1278): Offer a variety of free programs for parents of newborns including Visiting Moms, support groups, new mother/senior nurturing rooms, specialized home consultations and feeding support. Home visits for post partum depression are offered on a sliding scale. http://www.jfcsboston.org/ POSTPARTUM SUPPORT INTERNATIONAL (PSI) (805-967-7636): Web-based information, self-assessment and links to local support groups. http://www.postpartum.net PrenatalHEALTHY START (1-800-531-6667: The Massachusetts Healthy Start Program provides early, comprehensive and continuous prenatal care for low-income uninsured women. Healthy Start pays for comprehensive obstetrical care for women who meet the program's eligibility guidelines. http://www.mass.gov/dph/fch/hstart.htm MASSHEALTH PRENATAL (1-800-841-2900): Offers health care benefits right away to a pregnant woman for up to 60 days. During the 60 days, the Division will decide if the pregnant woman can get another MassHealth coverage type. http://www.state.ma.us/dma/ PREGNANCY/ENVIRONMENTAL HOTLINE (1-800-322-5014): The Pregnancy/Environmental Hotline provides confidential and non-judgmental counseling for pregnant women exposed to a potential teratogen based on currently available medical information. http://www.thegenesisfund.org/pehservices.htm Public Benefit ProgramsCHILDREN'S MEDICAL SECURITY PLAN (Massachusetts) (1-800-531-2229): Health Insurance Program that provides children and adolescents with access to primary care and preventive services. Benefits include well child care; family planning and limited dental, emergency, mental health, durable medical equipment and prescription drug coverage. Any child age 18 or younger who lives in Massachusetts, is currently uninsured for primary or preventive health care, and is not eligible for primary or preventive health care coverage through MassHealth is eligible for coverage under CMSP. http://www.state.ma.us/dph/bfch/mcfh COMMONHEALTH (Massachusetts) (1-800-841-2900): A program to purchase MassHealth
(Medicaid) coverage for Massachusetts residents with disabilities
through a sliding fee based on income and family size. May also
serve as a secondary insurer in some cases. http://www.masschec.org/Services/CommonHealth.cfm
DEPARTMENT OF TRANSITIONAL ASSISTANCE (formerly Welfare) (1-800-249-2007): Food stamps, Transitional Aid for Needy Families (TANF) and other assistance. http://www.state.ma.us/dta/index.htm F.O.R. FAMILIES (1-800-624-5442): Home visiting program whose primary goal is to help homeless families while they are temporarily sheltered in motels awaiting shelter placement and/or permanent housing. Services are free and participation is voluntary. Home visiting services are available for families who are receiving Emergency Assistance [EA] from the Department of Transitional Assistance [DTA] because they are homeless and living in motels temporarily. http://www.mass.gov/dph/fch/forfams.htm HEALTH INSURANCE PREMIUM PAYMENT PROGRAM (HIPP) (1-800-462-1120): Reimbursement program for employer sponsored health insurance or a form of group insurance for families with a child with a disability on Mass Health. Family tip sheet. http://www.state.ma.us/dma/ HEALTHY START (Massachusetts) (1-888-665-9993): A program of prenatal care which offers information, referral, support and advocacy to pregnant women in Massachusetts, and may also cover the cost of obstetrical care for those women who meet eligibility requirements. HOTLINE assists pregnant women to apply for Healthy Start/Medicaid. http://www.mass.gov/dph/fch/hstart.htm KAILEIGH MULLIGAN (Massachusetts) (1-800-408-1253): A Medicaid program that does not count parent income for Medicaid eligibility. It is intended to enable children with severe medical conditions that require technological dependence and/or skilled nursing care to be cared for at home. Tip sheet for families online. http://www.mass.gov/dph/fch/care/kaileighmulligan.htm MASSHEALTH (MEDICAID) (1-800-841-2900). Offers a broad range of health-care services by paying for part or all of a MassHealth member's health insurance, or paying medical providers for services given to MassHealth members. Qualified MassHealth members may be able to get doctor visits, prescription drugs, hospital stays, and many other important services. Eligibility: Income eligible families, children under 19, children receiving AFDC or SSI, children with Kaileigh Mulligan. http://www.state.ma.us/dma/ PUBLIC BENEFITS INFORMATION LINE (1-800-882-1435): Provides information on state programs that help finance health care for children with disabilities and chronic illness. Also provides information and referral for DPH Case Management services and the Infant Hearing Evaluation and Infant/Toddler Hearing Aid Program. http://www.mass.gov/dph/shcn/ssi.htm SSI (Federal) (1-800-772-1213): A monthly cash benefit and Massachusetts Medicaid coverage for payment of Medical bills. Eligibility: Child under 18 who is blind or has a serious illness or handicapping condition AND meets income eligibility guidelines. (Infants/children hospitalized for a full calendar month may not need to meet income eligibility guidelines while hospitalized.) Resource ReferencesDISABILITY RESOURCES MONTHLY (DRM) GUIDE TO RESOURCES ON THE INTERNET: A listing of resources for the disabled. http://www.disabilityresources.org FAMILY TIES RESOURCE DIRECTORY: Comprehensive Resource Directory developed by Family Ties to assist families of children with special needs to locate resources. Directory can be downloaded from internet site. http://www.massfamilyties.org/directory.html FEDERATION FOR CHILDREN WITH SPECIAL NEEDS FAMILY RESOURCE DATABASE: The Family Resource Database contains information about agencies in Massachusetts and throughout the United States which provide information and/or services to families. The database is divided into many categories as well as cross-referenced by age group and regions in Massachusetts where applicable. http://fcsn.org/resources/search.php3 INTERNET GUIDELINES: Sponsored by the Maxwell and Eleanor Blum Patient and Family Learning Center at Massachusetts General Hospital (617-724-7352). Helpful guidelines on how to use the internet and how to evaluate an internet web site. http://www.massgeneral.org/pflc/howto.asp MASSCARES RESOURCE LOCATOR (Sponsored by the Executive Office of Health and Human Services): This tool will help you find local and statewide organizations that can provide services such as housing, food, financial assistance, benefits and child care. http://www.masscares.org/RLocator/ RespiteEARLY INTERVENTION REGIONAL CONSULTATION PROGRAM: Team available to a child's early intervention team which can provide consultation regarding respite services. Child must be enrolled in an Early Intervention Program.http://www.criterionchild.com/reg.html RESPITE: State respite managed through the Department of Public Health (1-800-882-1435) or the Department of Mental Retardation (617-727-5608). SafetyCHILDHOOD INJURY PREVENTION PROGRAM (617-534-5197): CIPP combines education, technology and legislation to reduce the risk of injury to children. Training, safety supplies and educational literature are offered to the community to facilitate behavioral and environmental changes. http://www.bphc.org/programs/program.asp?b=1&d=5&p=2 HEALTHY HOMES PROJECT (1-800-532-9571): Home visit program funded by the Department of Public Health which provides for home visits which will assist families to identify and modify safety hazards in their home. POISON CONTROL CENTER (1-800-222-1222): New national number allows caller to place call from anywhere in USA, call directed to local regional Poison Control Center. SchoolA PARENTS GUIDE TO SPECIAL EDUCATION (1-800-331-0688): Written by the Federation for Children with Special Needs in collaboration with the Massachusetts Department of Education, the Guide is meant to serve as a resource for parents, and the organizations that serve them. The Guide contains the most current and accurate information available regarding the special education system in Massachusetts. http://www.fcsn.org/parentguide/pgintro.html IEP/CHAPTER 766: Local school system provides for tests, assessments and delivery of Special Education services. Contact the Special Education Services Coordinator of the local Public School System. MASSACHUSETTS DEPARTMENT OF EDUCATION (781-338-3300): Oversees the public education of all children in Massachusetts and is responsible for ensuing that all the provision of Chapter 766 (the MA special education law) is met. Can provide a copy of the law to consumers. http://www.doe.mass.edu/ MASSSTART: (Massachusetts Technology Assistance Resource Team) (508-792-7880) is a collaborative service that helps families and schools plan for the health care and safety of children and adolescents with special health needs at school, especially those assisted by medical technology. http://www.mass.gov/dph/fch/masstart.htm SCHOOL HEALTH PLAN: Plan developed by child, parent, school nurse and physician for the management of medical problems at school. Contact school for their plan format. STUDENTS WITH CHRONIC ILLNESS: GUIDANCE FOR FAMILIES, SCHOOLS AND STUDENTS: A Guide for working with the school when a child has a chronic illness. http://www.nhlbi.nih.gov/health/public/lung/asthma/guidfam.htm State AgenciesMASSACHUSETTS COMMISSION FOR THE BLIND (617-727-5550): Provides services to meet the individual needs of eligible registered legally blind children. http://www.mass.gov/mcb/ MASSACHUSETTS COMMISSION FOR THE DEAF AND HARD OF HEARING (1-800-882-1115; TTY 1-800-530-7570): Provides services for individuals who are deaf or hard of hearing including interpreters, case management, children's services, services related to technology, general information. http://www.state.ma.us/mcdhh/ MASSACHUSETTS DEPARTMENT OF MENTAL RETARDATION (617-727-5608): A Commonwealth of Massachusetts Human Service Agency whose Mission is to provide services and support to individuals with mental retardation and their families. http://www.dmr.state.ma.us/ MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH: DIVISION FOR SPECIAL HEALTH NEEDS (1-800-882-1435): Plans, implements and evaluates public health programs for children with special health care needs and their families. http://www.mass.gov/dph/fch/dshn.htm MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH, DIVISION FOR SPECIAL HEALTH NEEDS: CARE COORDINATION PROGRAM (617-624-5070): Experienced staff members are located in regional health offices and selected pediatric practices in each part of the state. Care coordinators provide information and referral to community services; case-specific consultation to parents, educators, and medical and social service providers in home and agency settings; training in public benefits to parents' groups and agency staff. http://www.mass.gov/dph/fch/care/index.htm MASSACHUSETTS REHABILITATION COMMISSION (1-800-245-6543): The Massachusetts Rehabilitation Commission (MRC) assists individuals with disabilities to live independently and to go to work. MRC is the agency of the Commonwealth responsible for Vocational Rehabilitation Services, Independent Living Services, and for eligibility determination for the SSI/SSDI (federal) benefits programs for Massachusetts citizens with disabilities. http://www.mass.gov/mrc Substance AbuseAL-ANON; ALA-TEEN (1-888-4AL-ANON): Support for family members affected by alcoholism and other substance abuse. Separate groups for adolescent family members. http://www.al-anon-alateen.org/ MASSACHUSETTS DEPARTMENT OF PUBLIC HEALTH BUREAU OF SUBSTANCE ABUSE SERVICES: (617-624-5111) http://www.state.ma.us/dph/bsas/bsas.htm TransportationAMERICAN ACADEMY OF PEDIATRICS POLICY STATEMENTS (1-800-336-5475): Policy Statements "Safe Transportation of Newborns at Hospital Discharge", "Safe Transportation of Premature and Low Birth Weight Infants," "Transporting Children with Special Health Care Needs," "School Bus Transportation of Children with Special Needs" and Parent Education Guides "Car Seat Shopping for Children with Special Needs," "Car Seats for Children with Special Needs—Premature Babies, Casts and Wheelchairs." http://www.aap.org/ DEPARTMENT OF TRANSPORTATION TOLL-FREE HOTLINE FOR AIR TRAVELLERS WITH DISABILITIES (1-800-778-4838; TTY 1-800-455-9880). HANDICAPPED PERSONS PLATES AND PLACARDS (617-351-9222): Special handicapped license plates to enable disabled individuals to park in handicapped spaces. Applications available through the web site. Some town/city halls will issue temporary placards. http://www.state.ma.us/rmv/medical/plates_placs.htm MEDICAID TRANSPORTATION PROGRAM (1-800-841-2900 x.1): Non-Emergency Transportation Service such as door to door non-emergency transportation to and from medical provider when public and private transportation resources are not available. Requires prior authorization. Parent tip sheet and Sample Application Form PARTNERS HOME CARE TLC NURSING PRIVATE DUTY SERVICES (1-800-698-2628): Escort service provides a certified home health aide to accompany individuals to medical or social appointments. http://www.partnershomecare.org/privateservices.htm THE RIDE (617-222-5123 or 1-800-533-6282): MBTA's paratransit service provides advance notice, door-to-door transportation to those who, because of physical, cognitive, psychiatric, or sensory disability are unable to use general public transportation. The RIDE has wheel- chair equipped vans and covers the same communities that are served by MBTA buses, subway trains, or streetcars. http://www.mbta.com/traveling_t/disability_theride.asp Wish ProgramsMAKE A WISH FOUNDATION (617-451-WISH): A wish program for children living in Massachusetts between the ages of 2 1/2 and 18 with a life-threatening or terminal disease. http://www.mass.wish.org/home.html GLOBE SANTA (617-929-2007): Refer to Boston Globe in late fall for specifics. Generally requires a letter from a social worker. http://www.globesanta.org/requests.stm TOYS FOR TOTS (617-737-0500) OtherCASTASTROPHIC ILLNESS IN CHILDREN RELIEF FUND (1-800-882-1435): Fund intended to provide financial assistance to families with children experiencing a medical condition requiring services that are not otherwise covered by a private insurer, federal or state health care assistance, or any other financial resource. In order to be eligible, a family must have expenses related to a child's medical condition that exceed 10% of the family's gross annual income up to $100,000 and 15% of any portion of the annual family income that exceeds $100,000. http://www.state.ma.us/cicrf/ COMFORT CARE DO NOT RESUSCITATE (DNR) VERIFICATION PROGRAM (617-753-8300): Program to identify patients who have DNR orders. Enables EMT's and first responders to withhold resuscitation and to provide palliative, or "comfort" measures . Administered through DPH. http://www.mass.gov/dph/oems/comfort/ccare.htm DIAPERS FOR INCONTINENT CHILDREN: For children over three receiving MassHealth with a disabling condition (1-800-882-1435). FLEXIBLE SPENDING ACCOUNTS: Programs which pay for expenses related to the child's special health care needs, not covered by insurance. Consult Social Service, Case managers. Massachusetts Department of Public Health Program described on web site. MASSACHUSETTS COMMUNITY ACTION AGENCIES: Visit this web site to learn about a host of community based programs. http://www.masscap.org/agencies.html#ssca MASSPRO FLUCLINICS: Visit this web site to get information on community-based flu clinics. http://www.flu.masspro.org MEDIC ALERT KIDS SMART (1-888-633-4298): Medic Alert Identification Program for children. http://www.medicalert.org PARTNERS HOME CARE LIFELINE PROGRAM (1-800-910-4225): Offers a variety of options for calling a response center or a third party in an emergency. Options include a Personal Help Button (PHB), worn on the wrist or around the neck or a telephone link for people with limited physical abilities, through a selection of electronic switches specially designed for small movements such as a puff, a sip on a tube, a roll of the head, or the blink of an eye. http://www.partnershomecare.org/lifeline.htm SPECIAL MEDICAL FUND (1-800-882-1435) (DPH): Helps families pay expenses related to their child's special health care needs, when it has been determined that private or public benefits are not available for the service or item being requested. (e.g. medical bills not covered by health insurance, medications, respite, special equipment, medical supplies, etc.)
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